Results and Massages

Results day finally rolled around. Everyone had warned me that the wait for results was painful, but I felt a lot more relaxed about my post-operative results than I had been about my post-biopsy results, so the wait didn’t feel so bad. Despite that, both my husband and I were nervous when we went to the hospital to find out what they had found in my tumour and whether it had spread. I desperately wanted to avoid chemotherapy if possible, so I was really hoping for a reasonably positive outcome.

The results turned out to be slightly worse than thought in that the cancer was Grade 2 with a large area of DCIS (ductal carcinoma in-situ which is classed as Stage 0 pre-cancer) surrounding it so a total of 22mm had been removed. Following my biopsy, I had been advised that it was Grade 1, about 10mm and no DCIS so this was definitely news to me! It just goes to show that they really don’t know what is going on until they get it out and take a proper look at it.

Nevertheless, the good news was that the margins and the lymph nodes were all clear, so the cancer had not spread. I was now effectively cancer-free and as a result, the treatment plan was going to be radiotherapy and Tamoxifen for 5 years to ensure it didn’t come back: no chemo required!

On top of that, my scars were healing brilliantly and cosmetically looked pretty good. Despite them having to take a largeish chunk away it wasn’t obvious as my surgeon had made a great job of filling in the gaps and making me look even. All my scars will be covered by whatever top I am wearing so the only people that would ever know I had received a lumpectomy by looking at me would be me and my husband.

The news that I was now cancer-free was a huge relief, and my husband and I went off to the local ice cream farm and celebrated with an ice cream each followed by a posh supper from Waitrose.

A couple of days later I went for a fantastic relaxing oncology massage, which was absolutely what I needed. 90 minutes of wonderfully relaxing massage later, having nearly fallen asleep, I was feeling delightfully blissed out and relaxed and better than I had for ages. I am still getting tired more quickly and easily than I did before surgery, but I feel more and more like myself every day, and I am starting to see the light at the end of the tunnel.

Next up is radiotherapy. I don’t know yet how many treatments, or as they call them ‘fractions’, I am going to need and will discuss this with the oncologist in a week’s time. I am also waiting to talk to my doctor about starting my Tamoxifen, although given what I have learned about the side effects I am in no particular rush!

Brain like a goldfish

I completely underestimated how rubbish I would feel after my surgery.

It wasn’t even so much the lumpectomy that was uncomfortable, it was the sentinel lymph node biopsy that was the most painful, and the level of fatigue was just astonishing.

For the first few days, I seemed to do nothing but sleep, and I had the attention span of a goldfish: even watching the Kardashians was too taxing.

I tried using paracetamol and ibuprofen for the first 24 hours but eventually asked my husband if we would go to the pharmacy to get me some codeine as they weren’t really taking the edge off the pain. The pain was strange too. It was like a burning, nettle-sting pricking sharpness in the back of my left arm and shoulder blade. I eventually learned that this was normal and due to nerves being cut during the sentinel lymph node biopsy part of the operation, but I was surprised by how uncomfortable it was, and continues to be, 11 days after the operation. I had been warned about sharp shooting pains on the breast, but not about this.

What really helped was the physio exercises that I had been asked to do three times a day from the day after surgery to help regain my arm movement. At first, it was uncomfortable, but each day it got easier and helped improve movement and discomfort levels by stretching out the scar tissue. After a couple of days, I was able to stop taking the codeine, and after a week I stopped painkillers altogether. The pain is still there but manageable.

Physically, I am still not my normal self, even eleven days on. Short walks exhaust me and result in me needing a nap to recover. As a very fit and healthy 42-year-old, this really surprised me. I assumed I would bounce back a bit quicker than this but luckily, I have been too exhausted to be too frustrated.

I had a few days of getting quite woozy when standing up, and the breast clinic asked me to see my GP to get blood tests done in case I was a bit anaemic. I had the blood tests done and luckily they came back clear, and a few days later the wooziness stopped so I can only assume it was just some sort of anaesthetic hangover that resolved once the drugs were finally out of my system.

I am very bruised on my left breast and under my arm. However, my dressing under my arm started lifting so I went to the breast clinic to see if they could put a fresh one on for me the week following my operation. The nurse who removed my dressings was really surprised by how well I had healed in only a week and was contemplating not replacing the dressings. In the end, she put the dressing back on, but she was happy with how the wounds looked, so it is good to know that it’s all looking good even if it’s still quite uncomfortable.

Mentally I haven’t been too bad. I had a bit of a wobble on Friday last week, so my husband took me out for a drive and some ice cream as I hadn’t really left the house since my operation other than to go to the breast clinic and the GPs surgery, and that cheered me up. This weekend I felt like I really turned a corner and was starting to feel a lot more like me. I got properly dressed on Sunday and my husband and I took a trip to our local garden centre. It was so nice to leave the house and get out and about, but when we got home, I needed a two-hour nap before supper. Despite this, I feel like I am improving each day, and I feel very positive about that. The only cloud that is lingering over me now is the wait for the pathology results following the operation. I don’t know why but I have a bad feeling about them. I really hope I am wrong.

Surgery Day

Waiting for surgery seemed to take forever, and no time at all, all at once, but eventually surgery day arrived.

I had to arrive at the Surgical Admissions Lounge at 7.30am but my surgery wasn’t scheduled until the afternoon. Unfortunately, this meant that I wasn’t allowed any food from 6pm the previous evening, and no liquids after 7am: it was going to be a very long and very hungry day.

Due to ongoing covid restrictions, my husband wasn’t allowed to accompany me, so he dropped me off at the entrance of the hospital with my goodie-bag of entertainment for the long day ahead and then headed home to try and concentrate on doing his job whilst he waiting to hear how it went: I don’t think he had a very successful time at that.

I found my way to the Surgical Admissions Lounge and checked in. There were a few other people already there waiting for their day surgery too. The space was basically a waiting room with slightly more comfortable seats and two reception staff managing it. Every now and then a name would be called, and someone would disappear off for various pre-operative tasks before coming back a short time later to continue their wait. Everyone looked a bit nervous.

I was called quickly and went along with two nursing staff to have all my paperwork completed. They went through an endless checklist of questions, took my weight, and gave me my hospital wrist band as well as my sexy surgical compression socks which I had to put on before my operation and keep wearing for the next couple of weeks until I was back to my usual activity levels.

After that, it was back to the lounge for a short wait before taking a trip upstairs to Medical Physics. As part of my operation, I was also having a sentinel lymph node biopsy where they were planning to take a few of the lymph nodes from under my left arm to check that cancer hadn’t spread outside of my breast. To aid them with removing the right lymph nodes I was going to have a radioactive solution injected into my breast, this would travel to the nodes, and they would use a surgical Geiger counter to identify those nodes that had absorbed the radioactive solution, and they would be the ones that they removed: so clever!

The radioactive solution injection came in its own special lead-lined box. The injection was to be injected into my left nipple and the doctor administering it warned me that it would sting a bit like a bee sting: it certainly did! I was given a plaster and then I then had to lie there massaging my left boob for about 5 minutes to help the radioactive solution start making its journey to my lymph nodes. After that, I was free to return to the lounge.

A bit more waiting in the lounge which involved anxiously thinking about what the surgery would be like whilst half watching the BBC’s awful daytime television (Home Under the Hammer and Bargain Hunt) and I was called by the anaesthetist to go through more questions ahead of the surgery. After that, it was a short wait in the lounge and then I was called to have a chat with my surgeon. Again, there were more questions, but also an opportunity for me to ask questions. In truth, I felt I knew everything I pretty much wanted or needed to know at this stage, but I did ask how big the incisions were likely to be (about 2cm under the arm for the sentinel lymph node biopsy, and about 5cm on the breast for the lumpectomy), and how many lymph nodes they would be taking (no more than 2). I also asked if they knew when I would go for surgery and was told about 1.30pm. It was about noon at this time, so I was surprised it was going to be so soon. I had expected it to be much later in the afternoon, but apparently, the morning surgeries had finished early that day.

After another short wait watching the BBC lunchtime news in the lounge, my name was called to go down for surgery. We walked through the corridors and entered an area like a locker room where I could change into my surgical gown and stockings, and I handed over my belongings which were tagged and safely locked away for me. I then had a brief wait there and was then collected by a member of my surgical team. We took a short walk together to the operating theatre where there was my surgeon and anaesthetist and several other members of the team getting set up for my surgery.

I lay down on the operating table and the surgeon took my hand and chatted away to distract me whilst the cannula was put into my hand. I was given some oxygen to breathe and the anaesthetist started injecting the drugs to help me drop off. I remember starting to feel a little drunk and that the drugs going into my right hand hurt a bit. I remember complaining that it hurt, and then the next thing I knew I was waking up in the recovery suite.

Apart from feeling a little sleepy, I felt pretty good coming out of surgery. I know some people have a really bad time with nausea but I, thankfully, didn’t have any of those problems. I was feeling a little sore after the surgery and the nurse gave me lots of lovely morphine which really reduced the pain levels so after that I felt pretty good. I noticed a clock in the room, and it was 4.30pm so I had been in surgery for a lot longer than I had expected because I had it in my head that the surgery was about 90 minutes: clearly not!

My surgeon popped along shortly after to let me know that the surgery had gone as expected and that they had taken two lymph nodes from under my arm as well as the tumour from my left breast. They had also given me a sick note for 4 weeks post-surgery, which seemed like a very generous amount of time.

I spent about two hours on recovery. Honestly, I felt like I spent much longer there than I really needed to looking at the other people around me, but I think they were short on porters to move people from recovery back to the ward. I finally got to the ward at 6.30pm where I was finally able to get onto my phone to let my husband know that I was ok. It turns out he had gotten worried at about 5pm and had called the hospital and they had given him an update, and he had passed the information on to my family.

Being on the ward I had to do 4 things before I was allowed to go home. They were to eat, drink, go to the bathroom, and walk. As soon as I arrived, I immediately walked down the corridor to go to the bathroom, so that was two things ticked off the list very quickly. After returning to my bed, I guzzled a jug of water and two slices of toast and jam shortly after that. They also had to take my observation stats (blood pressure, heart rate, blood oxygen levels) three times before I was allowed to go, but I was finally discharged at 8.30pm.

I met my husband at the hospital entrance where we wrapped me in cushions for the journey home (bouncy country roads are not kind post-surgery). We also stopped by Mcdonald’s for a McPlant and fries because I was ravenous!

Hurry up and wait

I didn’t imagine that there would be quite so much waiting around in hospitals as I have experienced in the last few weeks.

When I got my diagnosis from the breast cancer team I was given a list of four appointments that needed to happen ahead of my lumpectomy surgery:

  1. Pre-operative assessment
  2. Insertion of a Magseed marker
  3. Covid test
  4. Insertion of radioactive fluid for sentinel lymph node biopsy

The first of these, my pre-op assessment, came around pretty quickly, but on the day of the appointment, there was an awful lot of waiting around. As I sat twiddling my thumbs in the waiting room of the breast clinic I noticed a lady who was clearly well into her breast cancer journey who had with her a bag containing a bottle of water and a book. I decided to learn from this old hand and make sure I had something similar for my next appointment.

When I was finally seen, about an hour after my scheduled appointment time, there were apologies: apparently they were short on rooms that day. It didn’t really matter, I had nothing else planned that morning, I was more cross with myself for not thinking of bringing something along to entertain myself.

The pre-op was pretty simple. The nurse went through various forms checking information with me that they needed to know ahead of the operation. I had to provide her with my list of current medications, and my weight, height, blood pressure and resting pulse rate were all taken. I also had the delightful task of having an MRSA swab which leaves black goop up your nose and along your knicker line (although it was still probably better than having a covid test).

After that, I had a meeting with my breast cancer nurse, but that was another 30 min wait until she was available. At this meeting, I got the chance to ask some questions that I had been storing up over the past couple of weeks, as well as being given my very attractive post-surgery bra (Agent Provocateur it is not)! I was also given a lovely heart-shaped cuddle cushion to use after surgery, which had been donated by a local group that makes them for breast cancer patients (it is blue but has a spare pink cover with ice-creams on – so cute!) and a fabulous pamper pack from The Lewis Foundation (https://www.thelewisfoundation.co.uk/), which was such a lovely surprise, and definitely made me smile.

After that, I was sent to clinic 7 to have my bloods taken. When I arrived I had to take a paper ticket as if I was at a deli meat counter, and it turned out that it was a 90-minute wait to see the Phlebotomist. There was a huge queue of complaining people, and I felt really sorry for her as she was all on her own. As she took several vials of my blood she told me that she was working until 5pm taking blood at the clinic and then would spend the evening in the lab until about 8pm processing them: what a heavy day for her.

After my bloods were done I was finally free to leave, but my pre-op appointment had taken up the whole morning and some of the afternoon, and cost a small fortune in parking charges. This was definitely a good lesson in working with the NHS: don’t make any plans for appointment days because it takes as long as it takes, but do make sure you bring something to entertain yourself whilst you are waiting.

My next appointment was a couple of weeks later and thankfully wasn’t quite as onerous. I had invested in some bone conductor headphones so that I could listen to podcasts whilst I was waiting, but still hear announcements, so I made sure I had these in my handbag on the day of the appointment. This appointment was to have my Magseed marker placed in the tumour site.

I had done some reading about this ahead of the appointment and was just wowed by how clever this was. In the past, a wire was inserted into the tumour on the morning of the operation. The surgeon then followed the wire to make sure that they removed the tumour. However, having a wire sticking out of your boob, even for a short time, wasn’t very nice, and it just meant the morning of the surgery was much busier with procedures that needed to be done which made things more stressful for the patient. And that’s where the Magseed marker comes in.

The Magseed marker is about the size of a grain of rice and can be placed into the tumour site several days before the surgery takes place using ultrasound to find the right location. This means there is no longer any need for a guide-wire. The surgeon then uses a device on the day of surgery to find the marker a bit like metal-detectorist. The tumour, marker and clip that was placed into the tumour site when I had my biopsy are then all removed during the surgery. These Magseed devices apparently cost about £250 each, with the detector machine costing about £25,000 each. Thank goodness for the NHS because this clever kit is not cheap!

The clinic was running late for my 9am appointment, but at least I had my podcasts to entertain myself this time. I was finally seen about 45 minutes late, but thankfully the process of having the Magseed placed was insanely quick and easy. It was almost exactly the same as having the biopsy, but without the discomfort. I was so surprised when they were done.

Afterwards, I had to have a mammogram to check that the Magseed was in the correct position. In order to make sure it was right they needed to use my nipple as a marker for the mammogram so I had a ball bearing taped to it, which amused me no end. My mammographer was a final year student from Leeds and so lovely and reassuring.

Everyone that I have encountered on this journey so far has been absolutely wonderful, the NHS’s greatest strength definitely is its staff. After they were happy that all was good with my mammograms and marker I was allowed to leave: I gave them back their ball bearing. On the way home I made a quick trip to the supermarket to buy myself a large bunch of flowers for being brave, followed by a stop at Starbucks for a coffee and a piece of carrot cake.

So many letters

I don’t think I have ever received so many letters in one week.

I think our postie must have thought it was my birthday because the amount of post I received after my diagnosis was ridiculous. Every day seemed to bring another letter from the hospital with either information about what had been discussed and my diagnosis, or invitations for various tests that needed to happen before my scheduled surgery in May. Add to that, amazing family and friends sending cards wishing me love and to get well soon, and most importantly chocolate, there really were so many letters!

I was pretty floored in the days after receiving my diagnosis. I spent the day at home the day after and spent a lot of my time on my own in my office oscillating between reading everything I could get my eyes on on the Breast Cancer Now and Macmillan websites and having a little cry. My husband got home at the end of the day and found me sulking in the bath. He too had had a similar day of reading everything he could. The two of us are from an academic background and so our natural defence to anything is to research and educate ourselves. I decided very quickly that being at home on my own was not good for my mental health.

Thankfully, we had a long weekend booked at the end of the week in Wales. We had booked a cabin on a hill, surrounded by sheep and views, with a log burner and had planned to spend the weekend hiking and generally enjoying southern Snowdonia. This was exactly what I needed. So despite feeling really blue we headed off for a good distracting weekend that Friday.

The weekend was lovely and we had a lovely time, but cancer sat like a cloud over my head the entire weekend. Sleep evaded me and I just lacked my usual joyful self. Even so, I felt like getting away from it all was a fabulous distraction, but when we got home I sank back into the blues.

It was at that point that I realised, at the current time my mental health is definitely worse than my physical health, or at least it seemed that way to me, and I realised that I needed to make use of the various support networks that had been shared with me by my breast cancer nurse.

The forums on the Macmillan website are definitely amazing. Being able to talk frankly with other people that are going through exactly the same thing is massively reassuring, and I definitely found huge comfort in that.

I also called my GP to talk to them about medication. I’m an anxious person and so already have a prescription for Citalopram, but the GP increased that for me as well as prescribing a sedative to help me with my sleep. I also referred myself for talking therapy. It is so good to know that there is so much support out there and that I am definitely not the first person to be struggling emotionally with going through this.

I’m afraid its breast cancer

It was properly wet and windy on the day that I was scheduled to get my results. Olley, my husband, drove us to the hospital. I was quiet because I was anxious and felt sick with nerves. He chatted away reminding me that it had always been fine before, and besides, we knew I didn’t have any of the risk factors. I knew he was right, but it didn’t stop me from feeling sick.

Pulling into the hospital car park he chose a parking spot about as far away from the hospital entrance as you could get, which meant a bit of a damp walk through the rain to the main entrance where we put on the mandatory hospital mask.

On a previous visit, I had already had a fight with the security guard about masks. We have a stock of FPP masks. We have had to be so careful about covid because of his heart disease diagnosis in 2020. Whenever I have visited the Drs or the hospital, I have always worn an FPP mask because they offer the highest level of protection, and I wanted to look after him. I didn’t want to be the one that brought covid home. However, the security guard had told me that I had to remove my FPP mask and use the hospital mask, which I knew wasn’t as high a standard. In the end, we compromised on me wearing the hospital mask over my FPP one, and we did the same that day.

The Breast Unit is a several minute walk along the hospital’s long and maze-like corridors but having been there only 10 days before for my scan I knew where we were going. Olley said he was pleased I did because he would have gotten completely lost – all the corridors look the same, and the signage is intermittent at best.

Reaching the breast unit, I checked in. Because of covid, there aren’t really any chairs in the waiting room, and some were already occupied so Olley insisted I took the one free seat and then stood awkwardly next to me whilst we waited to be called. Thankfully it was only a matter of minutes before one of the lovely nurses, juggling a stack of files in her arms, called my name and took us along the corridor to a small bright room.

This room also had one chair in total, so she hurried off to find other chairs so that Olley could sit down, and so there would be somewhere for the consultant to sit too. As she bustled about arranging replacement seating, I tried to read signs into the things she said and did – was that good? was that bad? She left us to let the consultant know we were ready and then popped back quickly to ask if it was ok for a medical student to sit in on my consultation. This is never an issue for me, I work at a university after all, so I readily agreed but again my mind questioned, do they want to sit in because I have cancer?

Shortly the consultant, the nurse and the medical student all arrived, and suddenly the room felt very small indeed. The consultant introduced himself as Mr Ahmed and he was one of the specialists there, with him was Nicky who was the nurse, and he introduced the student too (but I forget her name). He went through the notes that had been made after my last visit and confirmed that I had had a mammogram, an ultrasound scan and then a biopsy.

“Unfortunately, the biopsy has come back showing there is cancer there,” said.

I think both Olley and I were extremely shocked to hear this. Olley reached out and took my hand.

“It’s only small, about 1cm in size so you won’t be able to feel it, and is early cancer, what we would call grade 1, and is slow-growing.”

I nodded, trying to take it in.

“Where you expecting this?” he asked.

“No,” I said. “I mean, I know I am lumpy and have had lumps removed in the past, but I have never had any problems before.”

I suppose he was surprised at my lack of reaction. I just nodded when he told me the diagnosis but what more can you do? I just felt empty and shell shocked.

Mr Ahmed went on to say that my cancer was oestrogen receptor-positive, which means it is fuelled by my body’s oestrogen, so part of my treatment would include medication to suppress my oestrogen and cut of its food supply. They also test for a protein in the cancer called HER2. My HER2 results weren’t back yet, but that would also inform my treatment.

“Most cancers are oestrogen receptor or ER-positive, and HER2 negative, so hopefully that will be what you have too,” he said. “That’s what you want.”

He outlined the plan for me. First, was surgery. A lumpectomy it was called, where they take away the cancer and a safe margin of tissue surrounding it. That is sent off to pathology following the operation and they test the margin of tissue to make sure there are no cancer cells there. If it is clear, you can be reasonably confident that the cancer has all been removed. I would also have a sentinel node removal. Cancer can sometimes spread into the lymph nodes in your armpits. The sentinel node is the first of those lymph nodes. From feeling my armpit nodes, they were pretty sure that they were not inflamed and so reasonably confident that there was no spread but couldn’t be sure until they had removed one or two and sent them to pathology to be tested. The lumpectomy and sentinel node removal had already been booked for me on the 5th May.

Before that date, I was given various appointments that I needed to attend including a pre-op assessment, an appointment to have a magnetic marker placed in my breast showing where the cancer was to aid with its removal, and an appointment to have radioactive dye injected into my breast so that they could find and remove the sentinel nodes. It was going to be a busy few weeks.

Following the operation, the plan, for now, was radiotherapy. This may change depending on the HER2 results and the results from the lumpectomy, but all being well it will be between one and three weeks of radiotherapy and then 5 years of an oestrogen inhibitor to make sure it didn’t come back.

“Do you have any questions?” Mr Ahemed asked.

“Many,” I replied, “but they aren’t forming into sentences at the moment.”

I tried to gather my thoughts and asked a couple of questions. Olley had a few too. Mr Ahmed answered them and then asked if he could check me over again. I stepped behind the curtain and was given another NHS superhero cape to wear. He had a look at the scars from my previous breast surgery and was very impressed with the small scar from my last one in Durham showing it to the nurse. “Your scar won’t be as neat as that,” he said. He also asked if it was ok for the medical student to review me, and so he talked her through inspecting my breasts.

After that, I got dressed again and realised my poor husband had spent the entire time standing awkwardly behind the curtain as they had pinched his chair for me to put my clothing on. We got settled in our seats again, and Mr Ahmed and the student left the room, leaving us with Nicky.

Nicky was going to be my key worker and would be with me through my treatment. She gave me a blue folder full of literature to take away and read. Some of it was about my treatment, some of it was contact numbers in case I had any questions, or people to contact if I was struggling emotionally. It had cards from Macmillan and booklets from Breast Cancer Now and I knew it was going to be so useful to digest the information in there once it had all sunk in a bit more. We asked a few more questions, but I think my brain had shut down by that point and I just wanted to leave. Nicky kept on looking at me like she was expecting me to say something or do something, but I didn’t know what she wanted. I guess she was probably used to more tears.

When we got out of the clinic, I looked at my phone and we had been in there for over 90 minutes. It had felt like a lot less than that. I was grateful that they had spent so much of their time explaining things to us but also realised my parents would be worried as they knew my appointment had been scheduled for 4pm, so on the drive home, I called to break the news to them.

Time and Irrationality

My appointment for my biopsy results was scheduled for 10 days time. So far, this year has raced past, but those 10 days waiting for my results progressed at a snail’s pace and seemed to get slower and slower as the time went past.

As the days went by I got more and more anxious about my results, which was completely irrational, I told myself, because it was almost certainly going to be fine: it always had been before.

Besides, I had none of the risk factors: there was no breast cancer in my family, I was only 42, I didn’t smoke or drink, I had a pretty healthy diet being vegan, I exercised a lot as a keen hiker and cyclist, and the pill always made me depressed so I preferred alternative contraception to hormonal options. All the signs pointed in a resoundingly positive direction. And yet there was this itch in my brain that I couldn’t shake.

I felt guilty for worrying and was nervous about voicing my concerns to friends because I presumed that everyone would think my a hypochondriac nutcase. Particularly, I thought, when I received my results and things proved fine, and then I had just made a big fuss over nothing.

A few days before my results I had a really vivid dream where I was browsing food stalls in a big open market, a bit like Borough Market in London. I stopped at one that was selling delicious looking baked goods and joined the queue to purchase something. As I got to the front the person serving looked at me and said, “Oh hello! I didn’t expect to see you here. I don’t usually do this sort of thing here, but you should know that you aren’t going to get what you want.”

“Thanks so much,” I had said to them with a smile, and they had frowned and said, “Don’t thank me,” and then the dream had slipped back into a frivolous dream about buying a blueberry muffin. When I woke it really stuck with me because it had been so strange and vivid and had stuck out in an otherwise banal dream. This certainly didn’t help my nerves because part of me wondered if this had been a message.

I dream a lot and am convinced I have received messages in dreams before. When I was in my first year at University my beloved Granddad had been quite poorly and had been in and out of hospital for some time. He had had a pacemaker fitted but was also having issues with his kidneys. Back then, no one had mobile phones so once a week, whilst I did my clothes washing, I would use the payphone in the lobby of my halls of residence to call home to my Mum and Dad to reassure them I was ok and to find out what the family news was.

I recall having a really vivid dream of a conversation with my Granddad where he told me that everything was okay, and that it didn’t hurt anymore. When I called home that weekend I learned that he had died around the time that I had experienced that dream. It could have been a coincidence, but I found it reassuring to see it as a message from him because it had been positive news despite us losing him. He was telling me not to worry about him and he was clearly thinking of me right up until the end.

This is completely irrational thinking from a very rational and highly educated person, but I do feel that there is so much more in this world than we could ever understand, so having a dream where I believed someone had given me a message that my results were not going to turn out quite as I had hoped didn’t help my anxiety.

The friends that I did tell of my anxiety about my results tried their best to put my mind at ease by telling me stories about when they, or a friend, or a friend of a friend, had had a similar experience of discovering a lump and it had turned out to be nothing. After all, 80% – 85% of the lumps tested for cancer turn out to be benign, and 80% of breast cancers occur in women over the age of 50, so my odds of having breast cancer were so, so slim.

I particularly enjoyed a story from a friend who had been to the doctor concerned about a breast lump. The doctor had referred her to the breast clinic. She had gone along and the consultant at the clinic had taken one look at her and told her it was her rib. She had lost a lot of weight recently and so her ribs were showing more than they had before. She was mortified, and the consultant was quite astonished that the doctor hadn’t been able to pick this up themselves. She, unsurprisingly, didn’t need to have any scans or biopsies and was sent home a little red-faced. Still, if it puts your mind at ease I guess it is always worth getting these things checked out by an expert.

When it comes to health we can all be a little irrational at times.

NHS Superhero Cape

I didn’t really think about my breast appointment whilst I waited for it. It was scheduled for a Saturday morning, which suited me because I didn’t have to miss any work. My husband and I planned that I would go to my appointment in the morning and then we would go out for a bike ride in the afternoon.

The sun was shining as I drove to the hospital: it was an absolutely beautiful spring day if not a little more blustery than I had thought it might be. At some point on the afternoon bike ride, I was bound to have to cycle into a headwind which was always hard work, and I hated.

I hadn’t been to the breast clinic at our hospital before. I don’t particularly like our local hospital. It is sprawling and always seems rather grubby, but to give the place it’s due both my husband and I had both been well looked after whenever we had had to go there for anything previously. The breast clinic was a walk of several minutes from the main entrance along a maze of corridors, but despite the intermittent signage I eventually found it.

Thankfully the clinic itself seemed new and sparkling clean, and blessedly quiet. I signed in and filled out a form about myself and my previous breast treatment. No, I had no idea when my last breast lump was removed. It was several years ago when we lived in Durham, we have lived through covid since then, there is no way that I can remember the date, and the one before that is a complete guess!

A lovely nurse called my name and walked me along to a room where I met the consultant. He was really nice. We chatted about my previous treatments, I got undressed, popped on my NHS superhero cape that they kindly provide, and he had a poke and prod at my breasts, drawing circles all over them in biro where he felt a lump. There were several, but I knew a lot of them had been there for years and had previously been scanned and confirmed as cysts, so the number didn’t bother me at all. Like I said, I’m lumpy!

After that, it was down the corridor for more scans. The consultant had recommended a mammogram and an ultrasound. “Hopefully you won’t need a biopsy,” he had said with a smile.

The mammogram room was cold. I stripped off again and donned my NHS cape. I’d had mammograms before and found them uncomfortable, but not a problem. Who can say they enjoy having their boobs squashed between two plastic plates?

Then it was a case of dressing again and waiting for my ultrasound. Again, I have had ultrasounds before, many times, as I was too young previously to have mammograms having only recently headed into my 40s. I’m always fascinated by ultrasounds, and how anyone can make sense of the grey and black shadows on the screen.

At this point, I realised that I really should have worn less clothing on my top half as I stripped off, donned my NHS superhero cape again, and took my place on the bed, slightly disappointed that my position meant I couldn’t view the ultrasound screen.

The nurse was lovely. “We try to warm up the gel,” she said with a smile as she unwound reams and reams of kitchen towels. “These are for you. The gel goes everywhere. What’s it like outside?”

“Lovely,” I said brightly. “I’m hoping to go out on the bikes for a ride later.”

“How nice,” she said. “We don’t get to see the sun in here.”

“That must be awful in the winter. I bet you arrive and leave in the dark.”

She nodded and agreed.

The lovely doctor doing the scan arrived at that point and apologised for the delay (not that I had noticed one). Apparently, her daughter had called apoplectic with rage because her Dad was making her wear her school trousers because she couldn’t find her jeans. She rolled her eyes, “Teenagers!” she exclaimed.

We laughed and she settled down to scan me. She started on the left-hand side spending a bit of time on one area and taking pictures: the machine beeping away. Then they went over to the right breast and scanned that area too. “You have a lot of cysts,” she said.

“Yep, I know,” I told her.

“Something is showing in your left breast that looks a little odd. I’d like to get a biopsy of it if that’s ok?”

“Sure,” I agreed.

The two of them started bustling about to get set up for the biopsy. The nurse apologised. “It takes longer to get set up for the biopsy than to actually do it.”

I’d not had a biopsy before, so this was new. Even though it was out of the ordinary for previous visits I can’t say at that point that I was worried. They will take a bit of tissue and it’ll be benign were my thoughts.

“Just a sharp scratch,” the doctor said when they were all set up and she was ready to inject the anaesthetic.

“No problem. I’m fine with needles,” I said. “I have pernicious anaemia and have B12 injections every 10 weeks. They hurt like hell. Anything else is minor in comparison.”

Left boob suitably numb the doctor manoeuvred the ultrasound probe and the biopsy needle to that she could get to the area she wanted to check. She took three samples which didn’t hurt but made an alarmingly loud clicking noise and I felt a punch-like pressure in my breast. After she had taken the samples, she dropped them into a pot ready to go to pathology.

“I know,” she said as I eyed the biopsy needle with alarm, “it’s huge!”

“I’m going to put a clip in now,” she told me. The clip was to be titanium and about the size of a sesame seed. “It shows the biopsy site so that when you have future mammograms, they know that this area has already been checked and reviewed,” she explained.

“It’s not going to set off the alarms in the airport, is it?” I joked, and they laughed and assured me it wouldn’t.

“Nothing strenuous for 24 hours,” the nurse told me as she started to patch me up. “That needs to heal up.”

“What about riding my bike?”

She looked unsure and checked with the doctor who was finishing up my paperwork. “Absolutely not. It’s all connected so resting your arms on the handlebars would irritate it. I wouldn’t recommend it. It will be sore when the anaesthetic wears off.”

So that was the planned afternoon cycling off the cards, although given the strong winds I was secretly pleased to be avoiding the headwind.

Clip inserted, steri-strips applied to the wound where they had cut me, and large plaster applied to cover them up and keep them all in place, I awkwardly mopped up the gel from the ultrasound with the bundles of kitchen towels that the nurse had prepared for me. “Wait there,” she said as I sat on the edge of the bed clasping my NHS superhero cape around me. “We will try and sneak you along to the mammogram suite so that you don’t have to get dressed again or wait in the waiting room.” I was appreciative of this. I felt like I had gotten undressed and dressed way too many times that day already.

As soon as the mammogram suite was free we hustled along the corridor, me in my cape followed by the nurse carrying my bra, vest, t-shirt, jumper, jacket and handbag. She deposited them tidily on the chair for me, and I had mammogram number 2 to make sure my clip was positioned in the correct place.

I got dressed again and had a brief wait in the waiting room before another lovely nurse collected me and took me down the corridor and into a room with comfy sofas and a box of tissues prominently displayed on the coffee table.

I had already let my husband know that things were taking longer than expected because I had had to have a biopsy and as a result cycling was off the cards, but this room alarmed me.

“Why have they put me in a room with tissues to wait for the consultant?” I WhatsApped him with a picture of the room.

“I guess it is just the waiting room for everything,” he replied.

The consultant arrived a short time later with another nurse in tow. “As you know we did scans and took a biopsy,” he said. “We aren’t too worried but given your history with lumps, we thought it prudent. We have booked you an appointment in 10 days to come back to get your results. You can bring someone along with you if you like.”

Covid meant that you weren’t meant to bring anyone but yourself to hospital appointments, so I queried this.

“We always allow people getting results to bring someone with them,” the nurse said reassuringly. “Do you have any questions?”

I didn’t. Even then I really wasn’t too worried. I knew the chances were that it would be benign and that I was probably wasting a lot of NHS resources. I would come back in 10 days with my husband, and they would tell me that everything was clear.

I left the breast unit and walked to my car. My left boob was starting to get a little uncomfortable where the anaesthetic was wearing off. I drove around the corner to Tesco and bought myself a bunch of tulips for being brave, and then went home and spent the afternoon lying on the sofa watching Netflix with an achy left boob.

I have always been lumpy

I have always been lumpy. Since my early 30s, I have been back and forth to my doctors with new lumps that I have found in my breasts. I have had two lumps removed at different times (one from each breast) so that they could take a better look at them.

On every occasion they have been benign, until they weren’t.

In the shower one morning in February I found a new lump in my right breast. “Oh great,” I thought, “another cyst.”

I asked my husband if he could feel it too. He could. “It’s probably just another cyst,” I told him.

“But you should still get it checked out,” he told me.

I knew he was right, so I called the doctor that morning.

I had the usual triage telephone call. “I’m just a bit lumpy,” I told them. Even so, they thought it was worth a look, so I dropped into the surgery a couple of days later.

Our doctors is on the university campus, and they are fab. They were amazing with my husband last year and caught his heart disease so early resulting in him having three stents fitted and possibly saving him from having a heart attack, so I am eternally grateful to them for that. I really can’t fault them, and they are certainly the best doctors I have ever been with.

The lady that saw me that day was just lovely. She explained that she was doing her master’s at the university and was extremely thorough. She did my blood pressure, blood oxygen, checked my temperature (I sort of felt this was for her course notes but it’s always lovely when medical professionals have a bit of time to give you a good check over), then another lady arrived to supervise her whilst she did my breast exam. She talked her through how to check my breasts, and how to explain in the notes where the lump was located using the hours of the clock.

“You are a bit lumpy, aren’t you?” she said conversationally as I sat there a little awkwardly, naked from the waist up sitting on the edge of the examination couch, whilst she checked my breasts.

“Always have been,” I smiled. “It makes keeping an eye on them a little tricky. You never know what’s a cyst and what’s a problem.”

“It’s always worth getting it checked,” she said as she finished up.

I got dressed and she confirmed that she had found a lump in the area that I had indicated and that she would refer me to the breast clinic at the hospital so that they could have a proper look at it.

I wasn’t concerned. I had done this before; it was inevitably going to be a cyst.

A few days later a letter came through to the house with my appointment in 4 weeks’ time. Previously I had always been seen within 2 weeks, but I had heard that covid had put huge pressure on the NHS and that the 2-week cancer referral target was consistently being missed, but I really wasn’t too worried. There were probably other ladies who weren’t lumpy that needed to be seen more urgently than me. It was almost certainly a cyst.